Tuesday, December 29, 2009

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Lyme and the use of Steroids

Hello everyone,

The past month I have somehow injured my left knee and had to see a doctor about surgery. Subsequently,, he gave me an injection of cortisone etc. to help relieve the pain until I can get in for surgery. However, as he was giving me the shot, I was remembering an article by Br. Burrascano, a well known Lyme literate doctor. The article had stated that steroids were absolutely not advised for Lyme patients. I didn't say anything, hoping the article was untrue. Sure enough, I have been miserable ever since the day of the shot. I have been achy all over, the fatigue is back and I feel terrible. Has anyone else had the same reaction to steroid shots for their back or their knees? Have you had to refuse these types of shots for pain control? I would be very interested for comments on any experience you might have with steroids? At this point, I would highly recommend that you not use steroids at all cost. I will keep you posted as to their continued effect on me.

I hope all of you had a very Merry Christmas and will have a great New Year. Thank you for visiting my blog!

Be well,
Richard

Sunday, December 20, 2009

"Under the Eightball"

Hi friends,
I found an article in the New York Times that I think all of you will find interesting. It concerns a new documentary movie. I hadn't heard about it prior to this article. I hope some of you will watch this movie and comment back to us so we can learn about it.

Be well,
Richard
Begin quote
December 16, 2009
MOVIE REVIEW | 'UNDER THE EIGHTBALL'
On the Nightmare Trail of Lyme Disease
By JEANNETTE CATSOULIS

Defensible anger becomes indefensible incoherence in “Under the Eightball,” a heartfelt documentary that twists an emotional journey into an anti-establishment tirade.

Written and directed by Timothy Grey and Breanne Russell, the film chronicles their 18-month investigation into the diagnosis and treatment of Mr. Grey’s younger sister, Lori Hall-Steele, who died of Lyme disease in Michigan in 2008. As the filmmakers track the history and politics of the disease, test for environmental causes and watch over the patient’s decline, the first half of the film envelops us in a tender, visually compelling cocoon.

Then things fall apart, so fast and so furiously that it’s impossible to know where verifiable science leaves off, and conspiracy theory begins. Propelled by rage and a string of interviews — with doctors, scientists, authors — the film lurches from Project Paperclip (which welcomed German scientists, including bio-warfare specialists, to the United States after World War II) to the Plum Island Animal Disease Center, from contaminated wells to Japanese germ-warfare experiments.

Taking aim against multiple villains — including Dow Chemical and the health and pharmaceutical industries — and appearing to parallel Ms. Steele’s lack of appropriate treatment with the government’s notorious Tuskegee experiments with black men and syphilis, the directors skid off the rails so extravagantly that there is no going back.

Unfolding like two very different films, “Under the Eightball” undergoes a midpoint conversion from fascinating bug hunt to nightmarish lecture. In the end, critical questions may remain unanswered, but Mr. Grey’s grief and frustration are incontestable.

UNDER THE EIGHTBALL

Opens on Wednesday in Manhattan.

Written, directed and edited by Timothy Grey and Breanne Russell; directors of photography, Mr. Grey and D C Hayden; music by Mr. Grey and Gabe Clark; produced by Justin Blake; released by Andalusian Dogs. At the IFC Center, 323 Avenue of the Americas, at Third Street, Greenwich Village. Running time: 2 hours. This film is not rated.
End Quote

Monday, November 23, 2009

Under Our Skin .. a possible Oscar!

Hello everyone,

I saw this on for and wanted to pass it along to you about the movie, "Under Our Skin" that I hope most of you have heard of and taken the opportunity to watch. It has made the short list of 15 for the Oscar nomination. I sincerely hope this film wins the Oscar. It will do wonders for the increase of knowledge around the country for Lyme disease.

Be well,

Richard

The Academy of Motion Picture Arts and Sciences today announced that UNDER OUR SKIN was selected as one of the 15 finalists competing for “Best Documentary Feature” in the 82nd Academy Awards®.

Unfolding like a real-life thriller, UNDER OUR SKIN exposes the hidden epidemic of Lyme disease and reveals how our corrupt medical system is failing to address one of the most serious illnesses of our time. Open Eye Pictures is thrilled that the Academy has honored the courageous Lyme patients and physicians whose stories are told in this film. And we hope that this nomination will help spread awareness about this devastating disease and serve as a catalyst for fixing our country’s broken health care system.

The Documentary Branch Screening Academy Committee viewed all eighty-nine qualifying documentaries during the preliminary round of voting. Academy members will now select five nominees from among the 15 titles on the shortlist, and Academy Awards nominations will be announced on Tuesday, February 2, 2010.


This was taken from the "Underourskin.com home page.

Wednesday, November 18, 2009

A personal note to all who suffer from Lyme disease!

Hi everyone,

It has been a long time since I have made personal note to the Blog. I have been experiencing a flareup of My Lyme disease problems and it makes me realize even, even more, why we have to defeat this disease. It has been over 8 years since I was stricken with this awful disease. Since then I have gone through working at my business from putting in over 60 hours a week on the average to now having to stay at home. It is an adjustment not easily made. My attempts on this Blog and on the Internet to develop new businesses for me to do from home has been more than frustrating because of the small amounts of time I can work on them. Tasks which I used to do in a few hours, now take me several days of months to accomplish. As a result, a person ends up spending more money than they are taking in. As many of you know having Lyme disease is expensive and debt can be accumulated quickly. So the new business attempts, although starting to trickle in some income, are not doing what they need to do. Brain fog, insomnia, headache, extreme arthritic type pain, overwhelming fatigue, and many other symptoms don't make it easy to accomplish what you have planned in any given day. I am finding how important it is to focus on only one thing at a time, work when I can and then listen to what my body is telling me to do. Those who are experiencing these types of frustrations know and understand the urgency of finding doctors and specialists who ar qualified to treat Lyme disease. I don't know how many times I have heard doctors tell me that they know nothing about Lyme disease and how to treat it. It is if those of us who have this disease are supposed to go home and suffer the debilitating conditions it places on our lives. Why aren't doctors required to stay trained on diseases affecting their patients? This question remains as one of the many unanswered questions of the day. If we have Cancer, we can find specialists to help us. It is that way with most of the other diseases. But Lyme disease patients find little to choose from. Ironically, the ones who are trying to help us are embroiled in the CDC's failure to properly recognize treatments that are working for Lyme disease. Many are afraid of losing their license to practice medicine if they treat Lyme disease with working treatments. In the meantime, thousands of Lyme disease patients are stuck in the middle and continue to see their lives ruined. All in all, some days it becomes quite frustrating. Thank goodness most of us are fighters and we arise the next day ready to continue the battle. For those of you out there going through similar problems, I know how you feel and how much you want to get better. I will continue to try and continue my meager efforts to keep us informed about this brutal disease. I apologize that I have not posted more information in the past couple of years. I hope to do better in the future. If any of you have any concerns or you would like to comment, I urge you to do so. Your struggles are our struggles and hearing them from you makes us all feel better. The main purpose of this blog remains Lyme disease. Yes, I do post some products and services that I have found interesting over the past few years. I list the products only in the attempt to make a little money to pay my medical bills. You are under no obligation to purchase anything from me to visit this blog or to find Lyme disease information. The cure and successful treatment of Lyme disease is why this blog exists. As the holidays are approaching, may I wish you all a wonderful Thanksgiving, a Merry Christmas and a healthy and happy New Year!

Be well,
Richard

Tuesday, November 3, 2009

About Me

My photo
Pueblo, Colorado, United States
I am a Chronic Lyme disease patient. I was bitten by a tick in 2001 and have been very sick ever since. Subsequently, you could say I am a Lyme disease junkie.I thirst for any information about it,any treatments, research etc. It has been a life altering experience, which has kept me away from our business and at home most of the time. I use to own A-1 Barricade and Sign Inc. here in Pueblo, Co, but because of the Lyme disease, my sons are running the business for the most part with my wife. I have been married for 48 years to a wonderful woman who is also my best friend. We have five children, all grown. Four boys live here in Pueblo and my only daughter lives in Bonney Lake, Washington. We miss her a lot. I have 7 grandchildren, which are the greatest of all. They are all exceptionally beautiful! The last thing you need to know about me is that I am proud to be a member of The Church of Jesus Christ of Latter-Day Saints. Because of this I have the knowledge that life is eternal and that it does not end here, but it will go on after death because of the Atonement of Jesus Christ. This truth I bear witness of!